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Information for Families with CAH

We hope that our studies can help patients and their families by answering questions about behavioral changes associated with CAH. We summarize here our past and current work. Please contact us if you would like more information.

We study behavior in girls and boys with CAH and in their siblings and cousins without CAH in order to understand the relation between early exposure to androgens and various aspects of social behavior and abilities. Our study is distinctive in its length and scope. We have been conducting this research for over 15 years, and many of the participants have been involved in the study the entire time, although we always welcome new participants! We also have examined a large variety of behaviors, accumulating data that can be used to address a number of contemporary issues in treating children and adults with CAH.

Here are some of the key topics we have studied. Click on the topic to learn more.
Girls with CAH are interested in boys' toys and activities in childhood and adolescence
Behavior appears to be related to hormones that were present during prenatal development and not to current aspects of the disease
Girls with CAH are also less interested in babies than are girls without CAH
But there are lots of ways in which girls with CAH are not different from girls without CAH
We are currently analyzing our data in several areas
We also study behavior in boys with CAH
Both girls and boys with CAH are similar in overall psychological adjustment to their siblings without CAH.
What are we studying now?
- Because ours is the only systematic study of children
and adolescents with CAH, it is important to follow
our participants as they grow up.

- We will also continue to study young children (ages 2
to 8 years) to answer additional questions about the
development of children with CAH.


Additional Information and
Resources can be found at:

Cares Foundation

The Magic Foundation

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